Copyright (c) 2007, Victoria Bloise, All Rights Reserved
noah

Noah Johnson is a 9 year old boy with Arnold Chiaris’ disease. Noah’s condition has no cure, and will worsen rapidly shortening his brief life dramatically. He has already had 59 surgeries in his short life, but on days when he feels good, his sparkling personality and slightly wicked wit come shining through! Noah has a passion for the Carolina Hurricanes, and with a team of volunteers from the Raleigh Chamber of Commerce Leadership Team, April’s Angels brought that passion to life! A customized bed was created for Noah that included a headboard made from a giant hockey puck, and a footboard that was made to look like a hockey net. The net housed a flat screen TV/computer monitor equipped with wireless mouse and keyboard, so Noah could watch all of the games and keep up on the players right from his bed. In addition, a slide was added to Noah’s bed that allowed him to have part of the playground experience he missed so much right in his own room. It also allowed him some independence to get out of bed in the mornings by himself. His room was surrounded in Hurricanes paraphernalia, and his toys, clothes and medical equipment were housed in newly created lockers, completing the hockey rink look. Noah was speechless when he saw his new room for the first time, but when his 3 brothers tried to claim a stake, Noah gave them each a push and uttered, “My Room!” Words not easily spoken from a boy who loves his new oasis!

 

Dalton's room after
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April's Angels Features!


Meet other April's Angels' kids:

Matthew & Martin
Dalton
Noah
Jordan



Fashion Victim's Ball highlights
(November, 2006)